Fast forward to 2019 stared getting pains from my knees traveled throughout my body into my head thought im going to die. After reading all the reports of strange muscle and joint pain caused by this medication, Im guessing that is the culprit. I got a book on osteoporosis from the library and it explained against taking alendronic acid and any other medication that contain biphosphates. My walking is less than a quarter of what it was, but that could be due to a herinated disc. Im 62. I woke up, called my doctor to make sure it was safe to take with a few broken ribs, and I was told yes. Hi. Had another car ride, but then it flared up again, sometimes I limped all morning. September 2020 Diagnosed with PMR & prescribed Prednisolone + ADCAL3D +Alendronic Acid. I take the Alendronic acid once a week every Monday morning at 7:30 am. Hi, I am 47 years old and recently found out I have osteopenia every where and osteoprosis in on of my hips. Below are the most common things you can do to care for your bones after you stop taking alendronic acid: You probably want to get rid of taking alendronic acid as soon as possible and do the natural way of treatment to avoid serious side effects in the future. I was such an idiot for believing in this drug! Clinical particulars. The hygienist cleaned my teeth a few weeks ago. Yet we women know when something is not right we seek help only to be fobbed off by stupid replys from doctors only to get rid of us . However for the past couple of months the left lower side of my face has been continuously swollen and my family have finally noticed. This settled after a few days Already taking Adcal D3 and steroids. She told me that all of these drugs, which is just a few, would cause me to have the same side effects. Small movements and small gentle breaths allow me to feel ok and for my muscles to be still. thanks for this site. Alendronic acid (108) is an aminobiphosphonate used to counter postmenopausal osteoporosis, and acts by inhibiting the activity of osteoclasts, bone cells that are involved in the resorption of bone. I decided to stop. This was long ago and it was a new drug but the GMC told my GP that yes there was a slight risk of an allergic reaction to it. Related Compound Libraries. They are ok and work fine for first few years ! I had a complete hysterectomy 24 years ago but could not tolerate HRT therefore was susceptible to osteoporosis but I had slipped through the net according to my doctor and only got a dexa scan in August 2017. What an awful time you are having my sympathy goes out to you. I carried on with my normal activities. I was put on Amitriptyline to help nerve pain. I had a scan 6 months ago and have osteoporosis. I was put on alendronic acid weekly and vitamin d and calcium twice a day . As soon as I told the duty doctor it was a possible drug clash, I sensed he immediately lost interest. Was taken into hospital and because I was taken alendronic they discharged me with 4 Tramadol pain was excruciating..Then I started knocking on doors ring any doctor who would listen no one listen. She sent me to a specialist for a second opinion and he said take it. So I still have not gotten ANY doctor to tell me that the osteo drugs were what CAUSED this but I dont see any other possible cause. Sunday night started feeling unwell, sleepless night, sweating and chills. After reading the patient information leaflet I was hesitant to take medication today. I am so worried about taking the meds but also worried about not taking them? The my neck was hurting. I chose the infusions and, after two infusions, the Pagets was seen to be in remission. It is usually injected by a healthcare provider in a doctor's office, hospital, or clinic. Because of how I tend to react and my blood test results, I thought I would research the new meds first and Im now very pleased that I did. In April 2010 I went back to my gym routine, and within a few weeks the second jerking episode occurred. I still do not feel right and have added pain, although a bit better than it was. This medicine is available as a generic drug in oral pill or solution form and under brand names like Fosamax (oral tablet) and Binosto (oral effervescent medication). Alendronate (alendronic acid) is a nitrogen-containing bisphosphonate which binds to bone surfaces and inhibits bone resorption by osteoclasts. I drank 2 cups of coffee. In my diary I have written that I felt lightheaded, as if I wasnt getting enough oxygen, and that my arms and head were fizzing. My wrists were swollen, aching. Alendronate works similarly to other bisphosphonate drugs like risedronate, ibandronate, zoledronic acid, pamidronate, and etidronate. This was on top of my usual activity levels. Nothing too spectacular to report. It has further become clear that my symptoms were not and are not brought on by activity per se, but by an increase and deepening in my breathing, as if the extra air I take in is poisoning me in some way. And of course I couldnt exercise, so taking the drug seemed suddenly very important. I am 70 and keep fit by walking everywhere. Hi I have been on alendronic acid for 7 months I was worried about side effects but have been ok but have noticed a weakness in muscles and am really stiff in mornings and if I sit down even for a short while. Then in early November I started to feel strange again. I have also been taking Adcal tablets for years. Ive only had one tablet of the Alendronic Acid yesterday, but seem to have quite a few of the side effects so wont have another again, and am miffed to see that people have problems for weeks even after one tablet. It usually takes 6-12 months of taking alendronic acid to support your bones. A big thank you to all. Hi everyone.I am new to this forum.I started taking Alendronic acid for the first time yesterday.I have had a bone density scan which shows i have oesteoporosis.I am 59 years old,considered myself quite fit until last June,I have read the side effects of these tablets and what other people have put about them.I am quite scared about taking anymore.I felt fine yesterday after taking mu first . However now it is back with a vengeance! The second is absolutely & completely familiar. Fast forward to 2008. If recommended to be taken twice a day, you should have it during lunchtime and dinnertime. Thus, it helps increase bone density, reduce the risk of bone fractures, and treat osteoporosis. Thanks. As you age, you will notice changes in your body, such as grayed hair, wrinkles, vision problems, and hearing loss. the pain in my muscles and bones is unbearable, chills, last I had night sweat, my stomach was bloated, acid reflex and the headache along with my jaw ache wont go away. As a follow up to my earlier post, on Feb 21st 2021, I am still experiencing side effects as a result of the ingestion of 1 biphosphonate Alendronic Acid 70g tablet on Sunday Feb 2nd. I was put on alendronic acid 70mg and in 2013 74, fractured hip. How Alendronic Acid Destroyed My Life. If you are taking this tablet once a week . Hi. What an awful position to be in! My ears was hurting. It starts after some seemingly minor jaw trauma, but jaw osteonecrosis can quickly decimate a jawbone. Learn more. I thought that my story was a Seroxat story. Whoa, I said, I want to do this with diet and exercise. and he said he would refer for being sedated,as he said he AA are wonderful tablets but do cause jaw and teeth probs along with everything else Am seriously thinking of coming off of them but want to see the outcome of coming off them and how safe it is. Even a couple of paracetamol would make me ill. And of course I was already taking Seroxat, albeit a very small amount. She doesnt have osteoporosis. A blood test followed and the inflammation was evident in the test, but I did not test positive for RA which I was worried about. Also, have you researched iodine? Im considering ringing the hospital myself to see if I can have one done. Does anyone know if theres a link between the 2 drugs or if theres a suitable alternative? Im 61 and after a long history of fractures (mostly sports related) and a recent wrist fracture from a fall, I had a DXA scan and have Oseopenia. Frequently missing a dose may lessen the drugs potency. Ive only taken one tablet going to speak to Dr tomorrow. Cyclophosphamide (NSC-26271, Cytoxan) Monohydrate is a nitrogen mustard alkylating agent, it attaches the alkyl group to the guanine base of DNA, shown to crosslink DNA, causing strand breakage and . Read on a page recently that the manufacturers of this drug have been sued in Canada by 1200 odd people and won 27.5 millionso why hasnt this been reviewed here. Hello I am 66 and like many of you am hating taking this drug, I had breast cancer 4 years ago,so am still taking Anastrosil as it was Hormone related,which in turn apparantly helped causing bone density loss, so ws then diagnosed with osteopenia Typically, doctors recommend taking osteoporosis medication for 3-5 years. I read its the same Acid in cleaning products! 3 months ago 43 Replies. I also have severe oseaoarthritis in my hip and other joints are affected. In some cases, ALENDRONIC ACID may cause side effects such as muscle or joint pain, nausea, indigestion, gas and headache. I wont be taking it as I feel I may be able to find a natural alternative. With the agreement of my GP I have now stopped taking the tablets. I was prescribed Alendronic Acid 70 mg by my GP a couple of months go due to fracturing my humorous after I tripped me fell. Eventually, I Started Pilates and regular walking. Started on Fosamax l6 years ago. In the meantime her teeth fell outliterally fell outwhat on earth was happening. She had breast cancer over 5 years ago and had a fall recently and broke her wrist. https://www.druglawsuitsource.com/canada-fosamax-lawsuits-settled/ My memory was a little fuzzy. Is it possible to just stop taking the tablets? I was going through a traumatic time at age 45 yrs and was diagnosed with hypothyroidism, the menopause and depression all at the same time. they mask the crumbling bones within and only show the outer bone growth, I have decided I really dont want to take these any more but wonder if there are side effects. I had investigated alendronic acid on the internet. However, it is not known to cause cancer or increase in blood pressure. I take Alendronic tablets as I had breast cancer and take the tablets for continuing bone health. Warning to anyone who might be taking Alendronic acid 70 ml tablets for osteoporosis ! Its 2.35am here in Kent & I am terrified about what 2moro will bring if I am forced to use AA. Delighted to report Tum is behaving much better since giving up just hoping the other side effects ( Jaw and Teeth) dont show up unexpected! My body jerked violently and out of control for hours. 20 mile house bernadette 0533 929 10 81; best time to visit kodiak island info@reklamcnr.com; grateful dead from the vault box set caner@reklamcnr.com; athens high school basketball roster reklamcnr20@gmail.com Can you give me the name of this book, I too am struggling with whether to go down the road of alendronic acid. My face had also experienced this and I have had swollen lips. In 2002 I discovered via the internet that I wasnt desperately ill with an anxiety disorder that only Seroxat could fix. Its recommended to take it on an empty stomach first thing in the morning. I hd bone density DXA scan scan in 2010 and was told i had I dont think there is enough information from doctors/nurses to explain about Osteoporosis to patients. What are we paying the doctors for? If you have osteoporosis, bone fractures commonly occur in your: Below are the most common factors that may put you at risk of developing osteoporosis: Youre also at a much higher risk of developing osteoporosis if you have health conditions like: Osteoporosis wont give you any symptoms, but you should visit your doctor if youre in doubt, especially if youre approaching menopausal age. So I duly took the AA70, now on third month. I also broke my hip, which made it even more difficult to do anything at all. That was the last tablet I took of that drug. I started reading this because after being diagnosed with breast cancer part of my ongoing treatment is Letrozole plus Alendronic Acid. My story begins in May 2014 when I was 72 and took the first once a week dose of one tablet with a glass of water. Tablets the gift that keeps giving, I have just had a DXA scan (following a wrist fracture) and it came back I have really bad osteoporosis. Dr David Brownstein has written, and talked on YouTube on this subject. On the third dose I took the tablet with a glass of water as usual and as it was 6.30am I decided to take the lurcher I was looking after for a longish walk (as you cant sit down once you had taken the tablet). 2023 The Heart & Brain. You can only stop taking alendronic acid when your doctor says so. Qualitative and quantitative composition. Severe cranial pain extending from my neck to the base of my skull and temples made worse when I move my head neck. I am aldo taking Calcio with vitamin-D My GP suggested that I take another brand but I cannot risk it. Ive been on Alendronic acid for a few months now. Hello Carol,just been asked to go and see my gp for a talk about having a break from taking alendronic acid.Going next week after taking them for more than ten years.I do remember having a bone scan after three years and the results showed some improvements in my bone density. Extra C/D also. My sister was recently told by her doctor that as she's been on it for over 5 years she should stop taking them for 3 years. No way am I taking another drug, and particularly not this one. Put on strong doses of steroids. I also had pain/soreness behind the eyes and a niggling headache for 48 hours. I will never take drugs like yours again. I am diary intolerant. Which has brought me here as I googled info on this medication. Hi, Ive just discovered this site. After reading this negative press about AA, I refused to take it. Like to leave a reply to louise bird I do wonder if all of this is as a result of being on Seroxat for so long. Taking alendronic acid can help if you have, or are at risk of developing, osteoporosis. Firstly, the potential gastric problems, secondly osteonecrosis of the jaw, and thirdly the suggestion that the quality of the bone created by the drug is not as good as normal bone. I do wish you the very best 2 years after that I had a dexa test. I had another Dxa scan. Went to dentist four days ago with toothache my dentist x-rayed my tooth and discovered I have a lot of loss of bone in my jaw cant remember the name for it but it was caused by my treatment for osteoporosis she said she cant take the tooth out as she could cause more damage she said she has to consult with another surgeon first I am in total agony with my tooth and jaw I dont know how much longer I can go on I wont hear anything to Monday so I have all day tomorrow and tomorrow night to suffer I dont know how much longer I can go on help, Ive just started taking Alendronic acid 75mg and for the last 4 days Ive been having really bad indigestion Heartburn and tightness of my chest muscles ache, no energy, depression. Dentist now tells me my teeth are not strong enough to hold a bridge again. Pharmaceutical form. https://youtu.be/Gb3G2Kv7kU8, Ive just been perscribed alendronic acid 70mg to take one a week..could you tell me if this is seroxat. If I could try these first what would people recommend and . Its such a dilemma. While there is no cure for osteoporosis, your doctor will give you a treatment plan like taking medications and lifestyle changes. Hi Judith Its essential to take your dose while your body is upright. 4. Take care, Tom. I had read the side effects of this drug and was very reluctant to take it. There are 8,218 reported reactions, bear in mind many dont report the side effects to the Yellow Card Scheme. Hi there. Now my story is about alendronic acid and the slow but sure decline of my health and fitness. Hi i have been given AA but couldnt take it due to stomach problems now they are thinking of sending me for infusion could i ask what natural solutions u are using as i was told I couldnt replace bone without AA am very worried about an infusion. 33% of reviewers reported a positive experience, while 47% reported a negative experience. As I sat up from the bed my head started to pound. My advice is dont risk your health when the adverse effects are so clearly documented. When zoledronic acid injection is used to treat high blood levels of calcium caused by cancer it is usually given as a single dose. But it probably has. Their non-medical use was to soften water in irrigation systems used in orange groves. Think Im off to GP to hear her thoughts!!! I suggested, because of the Seroxat link, that I might be sent to a Seroxat specialist. However, the pressure was on. My partner had videoed two of my jerking episodes for him to see and he asked if he could have copies to show colleagues for their opinions. Despite the doctors assurances that it wasnt addictive, I became addicted. Then seen a doctor over the pains in my head he asked how long Id been taking alendronic when I told him how long Id on them, he was horrified and reported straight away.They discovered I had broken Vertebrae leaning on my spinal cord.Alendronic should be band. My older sister, who had recently discovered she had osteoporosis, had a very bad fall, ironically as a result of a violent reaction to a prescription drug, and broke three vertebrae in her back. I was still a little sore, but improving. I was running 2 or 3 times, each week, circuit, bodypump, combat, body pump etc, about 14 hours of workout every week. You can, however, lie down after youve eaten your first meal of the day. Been given Alendronic acid 10mg tablet which I have to take daily. This makes them at high risk of developing osteopenia or osteoporosis. Its essential to take calcium supplements and vitamin D3 at least 2-4 hours before your first dose of alendronic acid. Terms|Privacy, Research Forum for Enduring Sexual Dysfunction, https://info.mhra.gov.uk/drug-analysis-profiles/dap.html?drug=./UK_EXTERNAL/NONCOMBINED/UK_NON_000837661002.zip&agency=MHRA, https://www.druglawsuitsource.com/canada-fosamax-lawsuits-settled/. Lately i have been feeling tooth pain and have told by the dentist they cannot see me without a letter from my GP if i am taking alendronic acid. My life coaching business came to nothing I am unable to work. I have many what I call, low grade headaches with a distinct feeling of fuzziness, disorientation and have problems concentrating. I was told that it was very uncommon what happened to me, and it was my choice to take it again next week or not. Hi Rowena. If prostate cancer spreads to the bones, the cancer can damage them and cause pain. Wait for at least 30 minutes after taking the drug. I have been on Sertraline 70mg for a few years and as I have asthma my inhaler has been changed to Beclmetasome 100/6. Stop taking your next dose if you experience rash or hives, swelling of your face, lips, or tongue, and trouble breathing. My sister and I were diagnosed with Osteoproosis over 5 years ago and we have both been taking Alendronic Acid since. 1800+ Cities. Im not going to take another one and just hope these pains gradually wear off. I have even had to report my concern and disappointment and lack of care by both my GP and Dentist. She was given physiowhat a mistake that was.After fighting to get her x rayed, the doctor phoned her and said that I was right and she needed a hip replacement, her hips had crumbled away. This drug is only available for prescription and should be taken with caution. So whats the point, it sounds like poison. Can you keep us posted on whether it goes down again, and if it does whether you or anyone can work out what it is about the drug is causing this to happen and what your doctor suggests when you get to talk to him. Alendronic acid and risedronate sodium have been shown to reduce occurrence of vertebral, non-vertebral and hip fractures. Hi just wondering how your getting on with the alendrolic acid? Im 59 and have a very physical job which involves a lot of walking, and I was told by a clinician when I first started treatment that it cant help the spine anyway! She said for the to call in on monday if there is no improvement. I reported the effect the drug had on me to the MHRA. From then on the amount of activity needed to bring on the symptoms became less and less, to where I am now. I have been told I will have one in 2 years. Until recently I only took my Thyroid med. Carole, you say you were meant to have another scan in 3 years, that is disgraceful that you have not had this. I guess my mouth has changed after a long time and it has not fitted properly for a while. I had a fall/fracture side of leg then DEXA scab and told I had osteoporosis, my reading was -2.6 which I believe is just over normal readings. Took dose 7, and on and off right hip aches, but now radiating to thigh. I quit often find that some of the drugs my doctor has given me gives me bad reactions. Alendronic acid is generally safe for long-term use and stays in your body. 31m+ Orders Delivered. Peripheral neuropathy in the hands and fingers. I think she must have dislodged it, I also have something called GCA which can affect your jaw so I cant say which or if either has caused the problem. I have been taking them for about 5 weeks. Anything more and pressure builds in my head, I feel lightheaded, my ears ring and my muscles jerk happily away by themselves. Has anyone has this done ? Bisphosphonates to treat bone weakness caused by prostate cancer that has spread to the bones. My lower face is completely swollen on the left side. I was diagnosed with Preliminary Billiary Cholongistis (PBC) in 2021 and am now informed I have osteopenia (May 2022); informed today that a prescription has been left at my chemist for Alendronic Acid to be taken once a week. Since things improved I kept taking the medication. Alendronic acid (bisphosphonate) is a prescription medication used to help your bones stay as strong as possible. My Seroxat story is classic and a repeat of so many other peoples. My worry at the moment is that I need a new crown in my teeth and do not know if this permitted and if I go ahead will it affect the health of my gums. I was wondering if the side effects of the drug actually go away, and if they do, how soon can I expect to see some sort of improvement? But the following is extract is certainly familiar; I have been reluctant to start this course of medication due to the possible side effects and negative responses from the enquiries I have made regarding the drug. Some years later she was in terrible pain and her doctor wouldnt believe me when i said that i thought her hips were dying. Now its probable to be loosing my teeth and I live on social security and am very afraid that my dental health has been irrevocably damaged by this drug. This is a dangerous drug. It is a condition when you have fragile bones, making you prone to bone fractures or breaks from daily activities such as walking or standing. I also ate one energice bar. When my doctor told me emphatically that I couldnt build my bones with diet and exercise alone, I reluctantly said ok, but I want to take strontium. From 2013 I was prescribed alendronic acid. The last two weeks I have felt terribly sick, not eaten much had terrible bloated stomach, one Sunday I felt so ill I had to do a 111 saw a medical person and was given a thorough test being told everthing was ok, I had put it all down to my gallbladder which it wasnt. I have been put on prednisone and even though my bones are ok I have been prescribed AA as prednisone destroys bones. Hi everyone I was put on alendronic about 25years ago after scan, had bad time painful joins,palpitations,pains in my chest was that bad they thought I was having heart attack,doctors dismiss as stress. This means that Alendronic Acid/Colecalciferol Mylan was intended to be similar to a 'reference medicine' already authorised in the European Union called Fosavance. Expanded V9V2 T cells from patients and healthy donors displayed similar phenotype and destroyed autologous and immortalized ovarian tumor . Exercise, especially lifting weights, helps to maintain healthy bone mass. I could hardly walk with pain all over my body, felt sick, couldnt eat. jaw ? Alendronic Acid. Thank you. Two or three times a week. Where do you live Jane hope you dont mind me asking. We spoke to the GP & asked if she could come off of Alendronic ,so she did, but now she is having problems with her arms, like a muscle ache. Stopped now. A few people felt that that there needed to be greater awareness of osteoporosis amongst the general public, with more information easily available in GP surgeries. A woman from Pembrokeshire says she "has been left with this fear" after a medicine she was taking has weakened her bones. She was put on Alendronic acid as she had a fall broke her wrist and has had breast cancer. I thought, as I was 53 and just into the menopause, it would be sensible to have my bones scanned and was shocked to be told I too have osteoporosis in the spine. Sister told the doc she intends taking Boron. I take 70mg PW now for about 12 mths. I think I will investigate more about Boron like the reviewer above. I am going down the route of continuing my swimming with a healthy diet some weight bearing Zumba step exercises. Once a week at the same time. The strange thing is that as soon as I read: That is exactly the reaction I had years ago to Metoclopramide the anti sickness drug. It knocked me out so I stopped it. Alendronic Acid/Colecalciferol Mylan is a medicine that contains two active substances: alendronic acid and colecalciferol.It was to be available as tablets. 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